My husband started having muscle fasciculations in 2019 and that started our journey. He worked 10-15hr days and never noticed the memory issues until he was diagnosed with a seizure disorder, stopped working in 2020 at the age of 45. He is now 48 with tremors, catatonic seizures, unsteady gait, no short term memory, long term memory impairment, heart rate issues which leads to passing out, can not draw a clock or tell time, has to push on his bladder to urinate & now forgetting who people are. Because of his age it’s close to impossible to get anyone to give a firm diagnosis. Last Neuropsych test points to FTD with early Parkinson’s. I finally got him into Baylor Institute this October with another neurologist who happens to be a Dementia specialist as NO Dementia Dr would see him because he is under 55. We have had so many diagnoses from ALS to LBD. I am hopeful we can get some answers with Baylor. He is currently on Zoloft, Kepra, Valium, Quetiapine, and Gabapentin but NO Dementia meds. He is the strongest man I know, talks to my mother daily who passed away in 2017 from Dementia which gives me comfort.
How my husband was diagnosed with Frontotemporal Dementia at 42
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